This has been a crazy long week. It is hard to believe that it has happened and we are here. The wait felt like it was never going to end and then the call felt too soon. I have been living in a hotel all week, James has been recovering and my Mom is living in my house with the kiddos. James' parents were here for the week. Everyone is in different locations.
There are times at home you know, when you have to clean up after the kids and vacuum all the time, that you think it would be nice to go to a hotel for a long time and have that all done for you. Heck if I don't want to I don't even need to make my own bed. I do still have to do my own dishes, but as it is currently just me that isn't that bad. However, I am only week one into and I have to say that the shine is gone. I would like to never do this again. I will say that with everything it is a good thing I enjoy walking.
I walk to the hospital twice a day, once in the morning and then again after I eat dinner. It is cheaper to come back to the hotel and eat supper than to eat at the hospital. And yes I do realize that sounds like I am not eating enough, I am, I swear. Visiting hours aren't until 10 so I eat a good slightly late breakfast then come back for an early supper, then eat a healthy snack when I get back after nine pm. If all the walking in the last week in minus 30 doesn't prove that I love James I don't know what will. Brr it really has been cold. This week is supposed to warm up though!
Now for James. He has been rocking recovery. His body has had a small hiccup today(Thursday). His bili liver result has gone up. This means he is a little more jaundiced then he was a couple days ago but still better than pre transplant. He has a MRI scheduled for tomorrow just to see if there is a blockage. Otherwise he has been improving and only the surgeon was slightly concerned and just wants to check. He was more awake today and we even got to escape the ward for a little. James let me push him around in a wheel chair, which if you have seen me push one before speaks to a large level of trust or shear desire to be elsewhere. I personally think the pure desire to not be stuck in one place. Since he is on a normal diet I can even bring him his favourite snacks. I am sure you will be shocked that GF and DF food is somewhat limited in the hospital. We get to attend a medicine training session tomorrow and he gets to go to the gym for physio tomorrow! Assuming of course the MRI doesn't end up interfering. So if you could all pray, cross your fingers and whatever else you do or believe that this is just a small hiccup and everything is fine!
If everything goes ok in the next week James could be discharged to the hotel with me or even if not the kids are coming up next weekend if he is doing well. I really miss those kiddos. I miss work and everything at the moment but would really love to see my kiddos.
Hoping for the best! Talk to you all later! Computer is being silly so if I haven't included something or there is terrible typing, TOO BAD! I have to live with it and so will you.
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